Mind-the-Patient Research Network

Our network of clinicians, researchers and designers develop digital tools to help patients prepare and participate in making difficult health choices with their doctor

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About

Mind-the-Patient

We focus on Patient Decision Aids that help patients prepare for and make difficult choices with their doctor about medical interventions.

About our aims

Research Network

Our clinicians, researchers, designers and developers work together to design, develop, test and implement effective Patient Decision Aids.

See the members

Patient-Centered Design

Patients play a key role in the development of Patient Decision Aids to help ensure their effective use in Shared Decision Making.

More about decision aids

Patient Decision Aids

Patient Decision Aids

Patient Decision Aids aim to help patients develop a clearer picture of the medical choices that they face and of their needs and preferences in relation to these choices.

Shared Decision Making

Patient Decision Aids can assist patients when preparing themselves to make healthcare decisions with their physician and to make decisions that are right for the patient.

Patient Voice

Patients who use Decision Aids feel better informed, are clearer about risks, and tend to make healthcare decisions that better reflect their personal needs and preferences.

Patient-Centered Design

Similar to the central role of patients in Shared Decision Making, patients also play a key role in the design, development and testing of Patient Decision Aids.

Research

We have two complementary areas of activity:

Digital Technology in Health Decision Science

We focus on the use of digital technology in the design of Decision Aids to improve the ways in which different patients determine and communicate what matters to them. This focus takes into account the challenging conditions of uncertainty, complexity and competing personal and medical needs and demands that patients can face.

Implementation of Decision Aids

We focus on ways to make evidence-based Decision Aids accessible to patients in their home environment and to integrate Decision Aids seamlessly and flexibly into the process of Shared Decision Making in clinical practice.

Publications

Kommentar I zum Fall: „Seelische Notlage und später Schwangerschaftsabbruch“. 

Westermair, A.L., Wetterauer, C., Schürmann, J., Trachsel, M. (2023)

Automated Detection of Decision-Making Style, Based on Users’ Online Mouse Pointer Activity.

Cheetham, M, Cepeda, C., Gamboa, H., et al. (2023)

AI knows best? Avoiding the traps of paternalism and other pitfalls of AI-based patient preference prediction. 

Ferrario, A., Gloeckler, S., & Biller-Andorno, N. (2023). 

Ethics of the algorithmic prediction of goal of care preferences: from theory to practice. 

Ferrario, A., Gloeckler, S., & Biller-Andorno, N. (2023). 

Patient narratives - a still undervalued resource for healthcare improvement.

Spitale, G., Glässel, A., Tyebally-Fang, M., et al. (2023)

Designing the health care workforce of the future.

Kaplan G.S., Meier C.A., Zimlichman E., et al.

The significance of professional codes and ethical guidelines in difficult clinical situations.

Wetterauer, C., Schürmann, J., Reiter-Theil, S. (2022)

Physician Assisted Suicide and Euthanasia in the European Context. In Thorny Issues in Clinical Ethics Consultation: North American and European Perspectives.

Wetterauer, C., Reiter-Theil, S. (2022)

Patienten-Entscheidungshilfen zur Werteklärung und Präferenzerhebung: Herausforderungen und Entwicklungen.

Cheetham, M., Holzer, B., Kleber, M., et al. (2022)

Strategien zur gemeinsamen Entscheidungs-findung in der Therapie bei Patient:innen mit onkologischen Erkrankungen: Quo vadis.

Kleber, M., Wicki, A., & Cheetham, M. (2022).

Privacy, Data Sharing, and Data Security Policies of Women's mHealth Apps: Scoping Review and Content Analysis. (2022). JMIR Mhealth Uhealth;10(5):e33735

Alfawzan, N., Christen, M., Spitale, G., & Biller-Andorno, N. (2022).

Gaming for better health? Comparison of cardiorespiratory and hemodynamic responses of exergaming with moderate endurance exercise.

Ketelhut, S., Ketelhut, R., Kircher, E., et.al. (2022)

Der IBD-Control Fragebogen: Deutsche Übertragung und Validierung des standardisierten Fragebogens zur Messung des Outcomes aus Patientensicht bei chronisch entzündlichen Darmerkrankungen.

Müller A., Bilger S.S., Göldi A. et al.

Provide access to information on assisted suicide for a patient with a diagnosis of depression? – An ethics consultation.

Winkler, L., & Wetterauer, C. (2021)

Ethisches Spannungsfeld – Freiheit und Schutz im Kontext der psychiatrischen Versorgung.

Wetterauer, C., & Reiter-Theil, S. (2021)

Knowledge extraction from pointer movements and its application to detect uncertainty.

Cepeda, C., Dias, M. C., Rindlisbacher, D., et al. (2021)

Design and Evaluation of User-Centered Exergames for Patients With Multiple Sclerosis: Multilevel Usability and Feasibility Studies. 

Schättin, A., Häfliger, S., Meyer, A., et. al. (2021)

Wenn ein Patient sein Leben beenden will: Rechtslage und Erfahrungen aus der Ethikberatung in der Schweiz.

Wetterauer, C., Reiter-Theil, S. (2020)

Association of Communication Interventions to Discuss Code Status With Patient Decisions for Do-Not-Resuscitate Orders: A Systematic Review and Meta-analysis. 

Becker C., Lecheler L., Hochstrasser S. et al. (2019)

Shared Decision-Making Training in Internal Medicine: A Multisite Intervention Study. 

Ritter S., Stirnemann J., Breckwoldt J. et al. (2019)

Ethics of the therapeutic alliance, shared decision making and consensus on therapy goals.

Reiter-Theil, S., Wetterauer, C. (2019)

Reflecting on the Reasons Pros and Cons Coercive Measures for Patients in Psychiatric and Somatic Care: The Role of Clinical Ethics Consultation. A Pilot Study.

Montaguti, E., Schürmann, J., Wetterauer, C., et al. (2019)

Übersichtsarbeit - Ethikberatung in der Behandlung von Abhängigkeitserkrankungen.

Schürmann, J., Jähne, S., Wetterauer, C., Reiter-Theil, S. (2019)

Couples adjusting to multimorbidity: A dyadic study on disclosure and adjustment disorder symptoms.

Horn, A.B., Boettcher, V.S., Holzer, B.M., et al. (2019)

Latent: a flexible data collection tool to research human behaviour in the context of web navigation.

Cepeda, C., Tonet, R., Noronha Osorio, D., et al. (2019)

Towards Socially Immersive Fitness Games: An Exploratory Evaluation Through Embodied Sketching.

Martin-Niedecken A.L., Márquez Segura E., Rogers K., et al. (2019)

Taking One’s Own Life in Hospital? Patients and Health Care Professionals Vis-à-Vis the Tension between Assisted Suicide and Suicide Prevention in Switzerland.

Reiter-Theil, S., Wetterauer, C., Frei, I.A. (2018)

Multimorbidität und Polypharmazie und der Einfluss auf die Ernährung. In: Eidgenössische Ernährungskommission EEK, Ernährung im Alter.

Fischer. K., Battegay, E., Holzer, B.M. (2018)

Validation of the German version of two scales (RIS, RCS-HCP) for measuring regret associated with providing healthcare. 

Richner, S. C., Cullati, S., Cheval, B., et al. (2017)

Health Behavior Change in Older Adults: Testing the Health Action Process Approach at the Inter- and Intraindividual Level.

Bierbauer, W., Inauen, J., Schaefer, S., et al. (2017)

Asessing adherence to multiple medications and in daily life at the example of patients with multimorbidity.

Ihle, A., Inauen, J., Scholz, U., et al. (2017)

Contributing Disciplines. In Dörner, R., et al. (Eds.). Serious Games – Foundations, Concepts and Practice.

Dörner, R., Martin-Niedecken, A.L., Kocher, M., et al. (2016)

A simple approach to fairer hospital benchmarking using patient experience data.

Holzer, B.M., & Minder, C.E. (2011)